I have a form of muscular dystrophy called Myasthenia Gravis. I first developed symptoms at the age of eight and had to navigate the complexities of the health care system for over 10 years before I was diagnosed. My experiences in navigating the complexities of the health care system and identifying providers to deliver quality care has made me an advocate for people with disabilities. As a disability advocate I emphasize working within the health care system in order to empower consumers to have a direct impact on the delivery of care.
I became a mother in 2013 to an enchanting baby boy. The joy of my son was over shadowed by my experience navigating the health care system in ways I did not expect. My dream is to create support services for new mothers so no one has to experience what I went through.
Through this blog I hope to explore my joy and struggles of learning to be a mom. Along the way I will share some of my stories as a mom with a disability, not for pity, not to be an inspiration but because it is a fundamental part of me. I am a spastic mom that frequently spills milk and rebels against the notion of “Leaning In.” I prefer to recline with a cup of tea!
To learn more about my work as a Disability and Health Policy Consultant see my linked in page.
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